tag:blogger.com,1999:blog-6583672216566631732.post715838427634370214..comments2023-07-15T08:47:53.558-07:00Comments on Snips and Snails: My apologies to the good onesJuliehttp://www.blogger.com/profile/12894803178034411194noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-6583672216566631732.post-48130528152180565752010-07-07T06:05:33.285-07:002010-07-07T06:05:33.285-07:00I cannot say how sorry I am for your experience at...I cannot say how sorry I am for your experience at this time of personal exhaustion. Hospitals suck the life out of you even in the best of circumstances. To be surrounded by people who you can't 1)understand and 2)trust to be gentle to your child makes it even more tough.<br /><br />Please know there are people out here listening and sending you virtual hugs.rebecca @ altared spaceshttp://altaredspaces.com/noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-2583397369329318202010-06-30T13:40:40.440-07:002010-06-30T13:40:40.440-07:00My name is Karen and my daughter Lindsey Austin po...My name is Karen and my daughter Lindsey Austin posted link for hats for Andrew on her Facebook. Three years ago I completed a six month "round" of chemotherapy and I can only imagine how toxic this would be on your son. I also work at a hospital and agree with another comment...go to the CEO of that Hospital. Sit at his doorstep until he/she makes time to meet with you. He/she is the one who can make the critical changes needed. You and Andrew are owed that...if they don't listen..go to the local newspaper. Hospitals do NOT like this kind of "news". Best of luck and I'll keep him in our prayers.<br /><br />Karen from CaliforniaKarenhttps://www.blogger.com/profile/03952438945951668433noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-26177330322819731612010-06-30T12:30:49.014-07:002010-06-30T12:30:49.014-07:00You commented on my blog that you were having a &q...You commented on my blog that you were having a "hospital watch" day. I'm praying for you and Andrew. I hope you are at home today!<br /><br />I understand your frustrations! Blogging has kept me sane because to get my frustrations into words I have to think them through and it helps me get rid of the excess emotions, not to mention it keeps me from excessively, verbally throwing-up on my husband.Rieshyhttps://www.blogger.com/profile/01480054293869865269noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-11622250636436836512010-06-30T09:42:46.892-07:002010-06-30T09:42:46.892-07:00I hope no one out there truly takes the things you...I hope no one out there truly takes the things you've said out of anger and frustration personally. If they are....I have a feeling they may be feeling a bit guilty at the way they've treated patients/families at one point. Many people tend to rant on the bad---bad doctors, bad nurses, bad waitresses/waiters, bad salesperson at a store, etc. But that doesn't mean we dislike ALL of them. ;-) <br /><br />So I say, if it helps you to rant here, continue to do so. And those that are taking things personally.....well, they need to think about WHY they are doing so. Because unless they are nurse Ursula that you speak of....they shouldn't have anything to worry about. ;-) <br /><br />Hope you guys have a beautiful and blessed day!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-9149921985337322962010-06-30T07:44:13.317-07:002010-06-30T07:44:13.317-07:00Oh my goodness Julie - I am ENRAGED for you!!!!! I...Oh my goodness Julie - I am ENRAGED for you!!!!! I can't believe how heartless some of the people that you are dealing with are. <br />I have never heard so many bad experiences over and over and over - especially in regards to dealing with a child with cancer. I am SO mad right now. I know that you do not have the energy for it, and that your soul focus is on Andrew's recovery - but something needs to be said about this behavior. I wish <b> I </b> could make a complaint on your behalf because that is just ridiculous. <br /><br />Anyway - I am sending you hugs and love. I know that I have stuck up for the medical profession before on one of my comments and I really hope I didn't offend. There HAS to be doctors out there that will treat you with the compassion and care that you need through this difficult time.<br /><br />Sending you hugs and love!!!Anonymoushttps://www.blogger.com/profile/01344568544923593635noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-77664391742234180432010-06-29T23:05:27.050-07:002010-06-29T23:05:27.050-07:00Oh Julie - Never, never, never feel like you have ...Oh Julie - Never, never, never feel like you have to apologize for your feelings. It is a HORRIFIC reality that you find yourself in. My heart breaks that you have had so much difficulty and that your experience has been what it is. My heart breaks knowing that there is so much that can be done to "soften" the already horrific experience, but isn't being done. My heart breaks knowing that your relationship with your oncology nurse should be one of trust, confidence and respect, but isn't. I pray always for you that grace will abound in each and every moment. I love that you own your feelings - do not apologize... there is no one in this world who can tell you what to feel or how to feel. Hang in there and know that I am here anytime you need me.Tiffanyhttps://www.blogger.com/profile/02620355198209520120noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-19980505135777368372010-06-29T21:49:00.020-07:002010-06-29T21:49:00.020-07:00I'm praying for you...HUGS.I'm praying for you...HUGS.Anonymoushttps://www.blogger.com/profile/00732203991908884482noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-52748333976379302592010-06-29T21:24:02.634-07:002010-06-29T21:24:02.634-07:00ah Julie - I'm so sorry - I'm with the oth...ah Julie - I'm so sorry - I'm with the other readers - vent, vent, vent - get it out. Also, I keep hearing about Cancer Treatment Center for America on the radio - every advertisement is from people who've been there and say the attitude they receive from everyone is wonderful. I don't know - maybe it's worth a shot - maybe they don't do kids - I don't know - there is one in Phoenix though. Praying :(Michellehttps://www.blogger.com/profile/03087392235752370152noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-32418095343579645692010-06-29T19:52:04.393-07:002010-06-29T19:52:04.393-07:00ok sweetie - just found your blog - just spent the...ok sweetie - just found your blog - just spent the last 20 minutes reading - I cannot even imagine what you are going through - or maybe I can because it is my deepest darkest fear but still - so hard and I am so sorry. You are in my prayers now - for sure!!!!! <br /><br />Hollyiheartbowheads.blogspot.comhttps://www.blogger.com/profile/05804520779425329846noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-27651879278140822632010-06-29T10:49:16.299-07:002010-06-29T10:49:16.299-07:00I echo everyone elses sentiment - it's got to ...I echo everyone elses sentiment - it's got to go somewhere, and if it gives you some release to let it out here, then we will be here to listen to you and provide support as best as we can. <br /><br />I also agree that a hospital administrator needs to hear about this too. Is there a patient advocate that can help you get your message to the right person? Us moms can change the world you know!<br /><br />((hugs))Lyndsayhttps://www.blogger.com/profile/11191079605746896379noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-79599360940007367662010-06-29T09:24:23.787-07:002010-06-29T09:24:23.787-07:00It feels better to let it out. So let it out!
Hu...It feels better to let it out. So let it out! <br /><br />Hugs, upon hugs, upon massive hugs!!!Alitahttps://www.blogger.com/profile/09470698206904719203noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-80914003299589513582010-06-29T06:00:30.765-07:002010-06-29T06:00:30.765-07:00Hi, I found your blog today just surfing along. I ...Hi, I found your blog today just surfing along. I have three boys, a little older than yours, but three boys all the same (and two dogs!) :) My youngest son has Rheumatoid Arthritis, no fun but certainly not cancer. I agree with Colleen's comments. I would write a letter (or 50!) to the hospital administrator. But, at the end of the day, I think what you are seeing overall is just a medical system that lacks empathy! I wonder why these people have chosen to go into medicine when they act like that around sick kids and their parents, and are they even aware of how they are acting! And just as I am telling you to write a letter, I also think if it was my baby, I wouldn't want to waste one precious second dealing with that garbage, I would want to be focused on the family. I don't know what the right answer is but I am sure you are not alone. Rageful, to me, is totally appropriate, shoot, just reading it makes ME rageful!Shannonhttp://www.showmethemom.comnoreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-75303691528664965822010-06-28T07:45:02.936-07:002010-06-28T07:45:02.936-07:00I work at a hospital. Trust me, your hospital admi...I work at a hospital. Trust me, your hospital administrator wants to know, the good and the bad. Write a letter. Nothing will change if they don't know about it. No one deserves to feel the way you are being made to feel, let alone someone dealing with Andrew's health issues and fears. <br /><br />I will keep following.<br /><br />Colleen<br />http://heoreosinheaven.blogspot.comColleenhttps://www.blogger.com/profile/01170077785421575264noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-38500045694605067892010-06-27T22:58:26.610-07:002010-06-27T22:58:26.610-07:00I agree with Wacky Mummy. Let it out! All of it, w...I agree with Wacky Mummy. Let it out! All of it, whatever it is. You'll go back to Andrew and your family with renewed strength and energy to fight this fight. We will listen and support you and <i>just be here</i>, no matter how far away we are.Staciahttp://myfluffybunnies.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-15818969449030648352010-06-27T18:56:27.594-07:002010-06-27T18:56:27.594-07:00Julie, I know you appreciate the good ones, but th...Julie, I know you appreciate the good ones, but that those few who seem uncaring are so infuriating it clouds the whole picture. Don't feel badly for sharing your true feelings...Chelseyhttps://www.blogger.com/profile/04206643310723527648noreply@blogger.comtag:blogger.com,1999:blog-6583672216566631732.post-72266381190583469582010-06-27T18:08:27.750-07:002010-06-27T18:08:27.750-07:00It's a hard thing to handle, the anger. It...It's a hard thing to handle, the anger. It's got to go somewhere or it'll eat you up from the inside. This is as safe a place as any to vent. Those who read this that are offended by your feelings don't have to read. Or they can try to understand and maybe learn a little from what you're coping with. The rest, we understand that your anger is natural. Let it out. Let it out! I just wish I could say (or do) something that would help. (But I know that nothing really helps but a friend allowing you to express your feelings.)<br /><br />I hope you get a new oncology nurse. You guys don't need any more grief and pain with an incompetent uncaring nurse around. I hope Andrew responds favorably to the medication so that it can end sooner than later. I hope you all feel the love and support and prayers that are coming your way... even from this far.<br /><br />God bless.koreen (aka: winn)https://www.blogger.com/profile/00988838659415402046noreply@blogger.com